I so get it.
The other day Emma kept repeating this phrase “Foxcourt.” She began to repeat her word in made up lyrics.
“Here’s my makeup word Foxcourt Foxcourt. Mom now you try it, ‘Foxcourt.” I obliged and she gave her beautiful belly laugh. She was so pleased.
I have heard that copying can be the best form of flattery. I have to agree. She was teaching me just as I have taught her new letters, and new words in both English and Portuguese. It was really an exciting moment to know that she really pays attention, and that she is in turn becoming a teacher herself.
Yesterday Chase was finally able to see a child psychiatrist. We have been waiting months to get in to see one. She is the same one we saw in October that informed us that he did not cognitively meet the requirements of the intensive outpatient therapy program, and recommended we get him in to see a psychiatrist.
Yesterday in her office Chase was flying higher then a kite and for the life of him couldn’t slow down. He was all over the place. We discussed his educational and emotional progress and she felt he was doing well on the Resperidone.
“He has gained a lot of weight, yes?” She lifted up his shirt and grabbed his belly. He giggled, me I felt a bit affronted. She didn’t ask permission, didn’t warn him, nothing.
“Is he always this hyper? ” She quarried, as she jotted notes.
I responded emphatically, “Yup, his teacher even mentioned that one on one instruction is difficult because his mind is running 5000 miles per minute.” (When I told my husband this he laughed – totally like father like son.)
“Hmmm, have you tried medicine for Attention Deficit and Hyperactivity?”
“Yes, each one made him violent and agitated.” I knew where this was headed.
“I want to start him on Stratera.”
“You know my husband and I really don’t want him on more medicine. His teacher says he is learning and they are handling his hyperactivity. ” I held my breath waiting for her response.
“Well, I want to take him off of the Mirtazapine since both of his current meds have a weight gain side effect. I want to put him on Tenex which will help slow him down a bit and should help him sleep at night.”
Ummmmmm, yeah. The new medicine slowed him down. Here he is at the bank. He came over to give me a hug. He started to rock me, which is one way for him to self soothe. Next thing I know I have dead weight.
An hour later we woke him up and went swimming. Right before we got in the pool we gave him his second dosage. He sat in the water sticking close to daddy for about 45 minutes. To his brother’s despair he was then ready to leave. Chase maintained he was hungry.
Never even ate a bite. I now sit at the mall food court while Scott has Dee and Emma and I am writing this blog.
I’m not sure how I feel about the Tenex, or his psychiatrist. I’ve done some reading and I hear that some kids take a few weeks to get over the sleepy side affect. I don’t like how irritable he has been today. Nor do I like this nearly comatose state he has been in all day. The doctor warned us it might cause drowsiness, and told us to break the medicine in half if we need to.
At least she gave us a letter for school with a new diagnosis. His last one was PDD-NOS but that is no longer considered on the spectrum and the psych examiner at his school told us to get an ASD diagnosis. I kind of cooked my head to one side when I read the doctors note.
“Chase* is under treatment for his diagnosis of Autistic Spectrum Disorder. I hope you can provide Chase* with an IEP that will help him with development and learning.”
That is the first time I have heard it stated as Autistic Spectrum Disorder and not Autism Spectrum Disorder. Hmmmmmmm. Hey, we’ve got a diagnosis, right?
And an hour later he still slept, and when we woke him he stayed groggy forever. Not very restive sleep. I am surprised with the echo in the food court. He normally doesn’t handle the noise. I think we are in for along night, unless his last dose knocks him out too.
*I changed the name in the doctor note to protect Chase’s privacy.
I am so grateful for this post. This will be invaluable for me and my kiddo.
As the mother of children, especially children with disabilities, I have been a frequent visitor to emergency rooms. It didn’t take me long to realize that those hours spent W A I T I N G were tedious for my kiddo and myself. In fact, for my kiddos with ADHD, they could be dangerous. With Steven, he would open all of the drawers and fling the contents onto the ground, swing from the air hoses and climb on top of the curtain. He was generally uncontrollable in an environment that he saw as a playground and I saw full of dangers that would land him in an emergency room for a reason other than for that which we had come! I had a knot in my stomach and tears of frustration. The emergency room staff and I finally learned that the only examining room suitable for Steven was one for…
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If you have a child with a sensory processing disorder, no doubt you have heard of using a “sensory diet” to help with regulating behaviors and responses during daily activities. The term gets thrown around a lot in SPD circles and many parents are hopeful that the right sensory diet will change everything. Using an appropriate array of sensory strategies can indeed be very helpful for anyone who struggles with regulating their arousal level during activities (too active or too under-responsive). The trick, when the person has difficulty processing sensory information, is to establish the correct “diet” and then apply it efficiently to get the most benefit or nutrition, if you will, out of the sensory diet.
“Sensory Diet” is a term that was coined by OT Patricia Wilbarger (creator of the Therapressure technique, aka “Brushing”) to refer to the therapeutic intervention of using specific sensory activities throughout the…
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This afternoon I drove home with my two kiddos in the back of our Chevy HHR, hoping and praying we would all get home in one piece. Emma didn’t have a nap at daycare today, and daddy forgot to give Chase his after school dosage of medicine. Both scenarios create whiny, weepy, grumpy children – and well okay, Momma too!!!!
Emma sobbed each time Chase tried to communicate with her. Granted, each of his attempts happened to be in her personal space and solely focused on Minecraft Youtube videos – trains to be specific. Emma, well she wanted no one to talk to her, and to be completely alone – in the car, driving 45 miles an hour down the highway, 20 minutes away from home. Sigh!!!!
“Chase, when we get home what do you want for dinner.” Sometimes I am able to redirect emotions by changing focus.
“Cereal.” He quickly replies, no thinking required.
“Cereal with milk?” I ask.
“No, cereal with marshmallows.” He answers matter of fact.
“Emma, what about you.” I look at my daughter through my rear view mirror. Tears streaming down her cheeks.
“I want cereal with marshmallow AND milk.” Said in between hiccups.
“Okay, Emma. I know what Chase wants to watch when we get home. What about you?”
“Um, My Little Pony.” I can hear her start to calm down and I start to breath easier. Nothing is more grating on my nerves then a screaming child while driving.
“No, we are watching Minecraft. Everyone in the world is going to watch Minecraft, with trains.”
“Yes.” He leans in closer to her, raising his voice and begins to cry himself.
“Nooooooo. I want to be alone.”
So do I kiddo. So do I.
Chase needed new shoes. Not just any shoe would do, for several reasons.
- He needs shoes that are high tops for better support. When he walks he tends to be a bit wobbly, kind of reminds me of a toddler’s walk.
- Chase is a creature of habit. I don’t know how often we have bought the same type of shoes.
We headed to Shoe Carnival and I flinched when I realized that basketball season ended and only a handful of high tops graced the shelves. To top it off, only one style had his size. He didn’t like the style. He wanted converses, and they didn’t have his size. Scott and I tried a different tack. I bought a much needed pair of shoes for my new job, Scott is hard on shoes and needs a new pair about every three months, and I found Emma her first pair of heels. Everyone had a pair, except Chase. Onto the plan.
“Mommy, Daddy and Emma have new shoes. Do you want to try on these shoes?” I already had them off the shelf and away from the Converses. He went for it!!! He doesn’t know how to tie his shoes, his fine motor skills are not quite there yet. We bought him a pair of no tie shoelaces in bright neon green. He was in seventh heaven.
This morning Chase put on his new shoes.
“Daddy, my shoes are going to hurt my owie. They are too tight” He hadn’t even put them on the entire way.
“Chase, If they are still too tight when we get to the car I will retie them. They are new. They will adjust.”
After school Chase excitedly met his father at parent pickup. “Daddy, you were right, they adjusted. But, we have to take my new shoes back. They made me run too fast, and jump too high.”
Today has been a rough one, and in my mailbox I was informed that one of my favorite blogs Finding Cooper’s Voice nominated me for the Liebster Awards. How lovely! I love that there exists these awards to give props to those out there that put their heart and soul into their words.
So here’s the deal:
So lucky Liebster’s have to do the following:
1. Thank the blogger who nominated you
2. Answer the 11 questions given to you
3. Nominate 11 other blogs with less than 500 followers (
4. Post 11 questions for your nominees to answer
5.Tag your nominees & post a comment on their blog to let them know you nominated them
I love the questions that she came up with for me to answer. Sometimes it is questions like these that help readers get a bigger hint of who I am.
1. What kind of vehicle do you drive? We have a Chevy HHR and a Town and Country van.
2. If you could live anywhere where would it be? I would live somewhere in Western Washington.
3. What is your dream vacation? The summer I met my husband I went to England, Scotland, Ireland, and Wales. I loved every moment of my trip, but I wished that I had someone with me to share it with.
4. If you won 10 million dollars what is the first thing you would buy? We would purchase a pup and have her trained as a support dog for Chase. Chase has already named her – Zoe (after Grandma Larkann’s Springer Spaniel).
5. What is your favorite sport? Um, Ice Skating????
6. Name something you are bad at? Keeping my house organized.
7. Would you rather have one best friend or 5 good friends? I would rather have five good friends. I think we need variety in our lives, and people have different life experiences to share with us. I want to have access to those life experiences.
8. What is the last movie you watched? Last night my husband and I watched “Catching Fire”
9. What is your favorite tv show from your childhood? It would have to be a tie between Little House on the Prairie, The Waltons, and the Brady Bunch. All family shows!!!!
10. What makes you happy? Hearing my children laugh, watching them sleep, reading a good book, spending time with my husband, talking to my mom on the telephone.
11. And lastly, what famous person would you give anything to meet? Dead or alive. It may seem a bit prosaic, however I daily do what I need to do to be able to meet my Heavenly Father once again.
Blogs that I admire – under 500 followers
- Peachyteachy I love how she writes about her life as a wife, mother, and teacher.
- Family Answers Fast Always a quick read and has great information that covers a variety of topics.
- Living, Loving, Learning . . . Together! She writes about her beautiful family and their antics while homeschooling.
- Random Words She shares wonderful insights and I adore her poetry!!!!
- Perceptions of Reality Her blog is witty, insightful, and full of awesome perceptive moments!
- My Journey Through Life Shares her story of raising four children with special needs.
I know it says to write 11 blogs, but I have to admit these are the ones that I have in my reader that are under 500 followers. Granted these were the only blogs in my reader that I could find in the last half an hour. There are probably a ton more, but it is getting late and well. I’m tired!
I have this habit, I tend to either live in the past or ruminate about the future. I find it difficult to just BE in the now. To top it off, I tend to be a pessimist. I struggle with positive thinking. This can cause some incredibly harrowing moments, especially when my husband is late and doesn’t call.
Sometimes these moments of distress are a blessing, for example during my pregnancy with my son at 35 weeks he stopped his constant motion. I kept calling the doctor (as his protocol) and he had me come in to check it out. We ended up with a baby five weeks early, and had I not worried so much – well, we don’t need to go there. I have a happy, healthy seven year old. Okay, breath!!!! (See what I mean?????)
Most of the time they just cause undo stress and anxiety. I actually remember the first time I started future trippin’. I was five years old. We lived in a trailer in Arkansas on the church farm. I remember playing with my dolls, and I started to think about what would happen if they got lost. Suffice it to say, the big fat tears started to fall and I held my dolls close to my heart.
Last night I had a great pattern change. I felt sick and my beautiful four year old daughter was sitting on my lap. She immediately started to gently stroke my face and give me feather light kisses.
“Mommy, I need to go tuck you in bed, come on.” She then took me by the hand and led me to my room. She waited for me to crawl into bed, then she lifted the blankets and tucked me in. “There, momma. Do you feel better? You need to get some rest.” She continued to stroke my face for a few minutes and then she went out to the living room with her father.
She left me stunned, and in tears. Not the sad tears, but the grateful kind. I once again started future trippin’. I saw my daughter as a mother, gently taking care of her babies. I saw her as a nurse taking care of the patients with loving kindness and grace. I saw her as a teenager spending time with her big brother, and making sure that he felt comfortable in social situations. Last night the future glowed with love and light.
I have long been aDr. Seuss fan, and after seeing these little precious gems it makes me love him even more. My favorite has to be #16 – because I love to read and learn.
In honor of Dr. Seuss’s birthday, I’ve come across a fun little collection of life sayings (from his books) to live by.
I know I’ve posted similar things in the past, but everytime, I come across one of his books or a collection of his work, I am amazed at how insightful he was. And I am amazed at how complicated adults must make things.
Note: sorry this is a few days late. I thought I published this piece but apparently word press had other plans.